This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!
David’s Story
David’s blog, Epilepsy Dad, shares the family’s journey with epilepsy which started in 2014. We were visiting Philadelphia ahead of a move to the city when their son had his first focal seizure. The first seizure is always the scariest, largely because it comes out of the blue and you never know what to expect or what to do when it happens.
Since that first seizure, the family has spent months in the hospital, tried countless epilepsy medications, started the ketogenic diet, explored CBD, and they are still trying to figure out what is causing the seizures and get them under control.
Jessica K. SmithFounder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
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