On CDKL5: A story of a hard to recognize illness in kids
According to Randi, “When our daughter first had a seizure it was subtle, quick, and questionable.” Today, she shares a story of hard to recognize seizures.… Read More
When hope returns to a life with epilepsy
A little bit of hope has returned and grows every week, every month, like a light at the end of a long, dark tunnel as I continue parenting with epilepsy.… Read More
When a Husband Becomes Epilepsy Caregiver
My husband, Pete, and I met before my diagnosis. But, when I was diagnosed with Intractable Seizures, Pete became my life-line.… Read More
Emotions and Epilepsy: The Medical Team, Support Groups, and Caregivers
Whether you are struggling with uncontrolled seizures or your seizures are fully controlled, you likely are dealing with complex emotions.… Read More
Epilepsy and Pregnancy: Celebrating Significant New Evidence in 2020
Learn more about epilepsy and pregnacy as well as the latest research on the topic.… Read More
Transition of Care: Transitioning Adolescent Epilepsy Patients
This blog post was submitted by Sunovion Pharmaceuticals Inc. Dr. Nassim Zecavati is a paid consultant of Sunovion Pharmaceuticals Inc. Certain organizations are mentioned in this post; this does not constitute an endorsement by Sunovion of these organizations. Meet Nassim Zecavati, MD, MPH Transition of care is a stressful time, but it … Read More
Epilepsy Blog Relay: Will Drum for a Service Dog
Brett decided that he needed a service dog. So Brett decided to take matters into his own hands (literally) and raise money with a drum performance online.… Read More
Epilepsy Blog Relay: A letter to young Natalie
This post is part of the Epilepsy Blog Relay™. Follow along all month! This blog post was submitted by Sunovion Pharmaceuticals Inc., the Founding Sponsor of the November 2019 Epilepsy Blog Relay. Natalie B.’s Story Sunovion is proud to feature #MyEpilepsyHero Natalie Beavers, author of this post, who offers a window into the ups and … Read More