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International Epilepsy Day 2019

In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.

Global Epilepsy: Helping Those with Living with Epilepsy in Uganda

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Gideon Ronie shares an update on his work helping people living with epilepsy in Uganda. He gives insight into how the pandemic has affected the community.… Read More

Epilepsy Blog Relay: Life with Epilepsy in Kenya

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This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Rich’s Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. … Read More

Epilepsy Blog Relay: Living Well With Epilepsy is nominated for a Her Abilities Award

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Jessica Keenan Smith, founder of Living Well With Epilepsy, has been nominated for a Her Abilities Award, a global award honoring women with disabilities.… Read More

Epilepsy Blog Relay: Global Epilepsy Training

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This year I had the chance to present as part of the virtual global epilepsy training. EAMC, which supports doctors and nurses in Low to Middle Income Countries (LMICs) looking to improve their patients’ outcomes.… Read More

The Guinea Epilepsy Project conducts 300 patient visits free of charge

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I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project. … Read More

Epilepsy Blog Relay™: Epilepsy advancements in developing countries

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Maureen’s Story: I wanted to highlight a few epilepsy advancements I witnessed on my travels in Mahenge, Tanzania. … Read More

Epilepsy Blog Relay™: Dr. Mateen Takes Mobile Technology Global for Epilepsy

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Dr. Mateen’s Story: If you are interested in innovation in Global Health, you may need to hear about the Bhutan Epilepsy Project. … Read More

Epilepsy Blog Relay: The story of the Mahenge Epilepsy Clinic

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This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts … Read More

Bhutan Epilepsy Project: Interview with researcher Erica McKenzie

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I recently had the opportunity to interview Erica McKenzie, a Bhutan Epilepsy Project researcher, who works with Farrah Mateen MD, PhD.… Read More

Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems

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This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More

Epilepsy Blog Relay: Emily on finding comfort when seizures return

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This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved … Read More

International Epilepsy Day 2019

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In honor of International Epilepsy Day 2019, we thought it would be fun to round up a few of our favorite stories that have come to Living Well from around the world.     Jessica K. Smith Founder and CEO; Executive Director Jessica Keenan Smith is a patient advocate and epilepsy community … Read More

 

 

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Jessica K. Smith Founder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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