International Epilepsy Day 2019

Maria Elizabeth invites us along on her twenty-one year journey with refractory epilepsy as she travels the world and completes her doctorate.… Read More

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved … Read More

As my regular readers know, I have traveled to Tanzania over the past few years. On one of these trips in 2015, I met a lovely young lady named Eppy. Since we met, my family has sponsored her last two years of education.… Read More

Jessica Keenan Smith, founder of Living Well With Epilepsy, has been nominated for a Her Abilities Award, a global award honoring women with disabilities.… Read More

This year I had the chance to present as part of the virtual global epilepsy training. EAMC, which supports doctors and nurses in Low to Middle Income Countries (LMICs) looking to improve their patients’ outcomes.… Read More

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Rich’s Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. … Read More

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts … Read More

This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More

I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project. … Read More

Farrah Mateen, MD, PhD, of Mass General Hospital and Harvard Medical School is taking mobile EEG tech to the Himalayas with the Bhutan Epilepsy Project.… Read More

Lisa, who has grown up in Zimbabwe and Kenya, shares how living with epilepsy has had both a physical and psychological effect on her.… Read More

I recently had the opportunity to interview Erica McKenzie, a Bhutan Epilepsy Project researcher, who works with Farrah Mateen MD, PhD.… Read More