Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy
Francesca’s Story: I have a type of epilepsy that was inherited from my mother’s mother. My grandmother was born with PCDH19 epilepsy.… Read More
Epilepsy Blog Relay: Five tips for adjusting to a medication change
Five helpful tips for adjusting to a medication change. I spoke with my doctor and we both decided that it was time to increase one of my medicines.… Read More
Epilepsy Blog Relay: Alison’s post on stigma
Alison writes about stigma and epilepsy on her blog Shed Light on Epilepsy. In her recent post she encourages us to think about our epilepsy in a new way.… Read More
Epilepsy Blog Relay: Colleen takes on cerebral palsy and epilepsy with a smile
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! The beginning After Colleen’s birth and being transferred to a nearby hospital’s NICU, we got the phone call that she had had two very big seizures and would need a blood … Read More
Epilepsy Blog Relay: Kat and living with seizures
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Kat’s Story Kathryn writes the blog, Kat’s Temporal Lobe Diaries. Kat writes, “Unfortunately I have seizures. It’s simply a part of my life, as much as every other thing.” She goes … Read More
Epilepsy Blog Relay: Sharon on the ketogenic diet and CBD oil
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Sharon’s Story Sharon Ross has a rare type of epilepsy. Though she has experienced seizures, the main impact the condition has on her life is her cognition. According to Sharon, her … Read More
Epilepsy Blog Relay: How running and a keto lifestyle keeps seizures at bay
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Brodi’s Story Epilepsy should be a four-letter word, or so I thought. I have lived with epilepsy since I was three years old, and while my episodes have certainly frustrated and … Read More
World Autism Day: Perspective Is Everything
In the early days I sometimes came across the statistic that up to one third of individuals with autism will also eventually be diagnosed with epilepsy. I never dismissed it, but I never dwelled on it, either – until it became a reality for us.… Read More