What is SUDEP?
According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where no cause of death can been found.
Recent SUDEP Articles
Original Article (2010)
Epilepsy is not that serious, right? I mean, its not like you can die from it or anything. Right?
According to the American Epilepsy Society, “it is very uncommon but not unheard of for people to die with a seizure.”
I suspect that the families that have lost a loved one to SUDEP or Sudden Unexplained Death in Epilepsy might have a different opinion.
‘Rare’ and ‘very uncommon’ are what patients hear from medical professionals when they ask the question, “Can I die from epilepsy?” But after having epilepsy for years, I just didn’t believe that the odds were in our favor, considering 3 Million people in the USA have it (and 60 mil in the world). So I did a little digging.
It didn’t take much. I quickly found that the AES considers ‘very uncommon’ to be the approximately 45,000 deaths each year.
According to the Epilepsy Foundation of America, about the same number of people die each year from seizures as die from either breast cancer or traffic accidents.
Yep, you read that right. Breast Cancer or Traffic Accidents. And really, how often are we walking to raise money for epilepsy or passing laws to fight for all those people dying from seizures?
Like I said the odds are not in our favor, there are more people in the USA (3 million) with epilepsy than there are people living with:
Autism (1.5 million)
Parkinsons (1.5 million)
So, now you know epilepsy’s little secret. But what can you do? Well, start by talking about it. Below are some sites you can visit that are talking about epilepsy.
As of 2016 the American Epilepsy Society and the Epilepsy Foundation have joined forces with the NINDS, CURE, and Danny Did Foundation among other family foundations to raise awareness of SUDEP in a variety of ways including a Partners Against Mortality Conference.