Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).
DYK? SUDEP is the most common disease-related cause of death in people with epilepsy. By having early conversations and educating patients and families on #SUDEP, we can work with them on the modifiable risk factors (AEDs adherence and adverse events). Read more on the connection between patient education and seizure freedom.
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Today’s post comes from the writer of The World of Gorgeous Grace. Below you will find an excerpt from this piece on living with the constant fear of SUDEP. Excerpt I … Read More