Epilepsy Blog Relay™: Shelby on weathering a crisis
The phrase “The weather is nice outside today” was my salvation when I needed to pretend that all was fine in the world.… Read More
Leila’s Ideas: Speaking about stigma at the Mardi Gras Gala
Sometimes, in my fight to eliminate stigma and live a “normal” life, I create the perception that my life is easy and free from struggle. However, in my speech at the Epilepsy Foundation of Western/Central Pennsylvania’s (EFWCP) annual Mardi Gras Gala I showed what life with epilepsy is like–both the good and the bad parts.… Read More
Loss from Epilepsy: Shelby finds signs of Clay everywhere
I am a firm believer in signs, not the type that are physically positioned throughout our daily lives, but those that are spiritually given to us when we need them most.… Read More
Epilepsy Blog Relay™: How a diagnosis of LGS connected one family to an entire community
This post was written by Elizabeth Terry, a historian and author in St. Louis, and mom to Spencer who has Lennox-Gastaut Syndrome (LGS). Living Well With Epilepsy is grateful to Lundbeck, a Sponsor of the November 2015 Epilepsy Blog Relay™. I remember my husband and I whispering to each other, “Is this … Read More
Chlo’s Story: Newly diagnosed with absence seizures
The Beginning I was in the car with my mum driving to school like I usually do. I felt fine and I didn’t know anything would happen. In school, I had Science after break. I went into class and I remember feeling dizzy and weird; then I can’t remember anything else. All … Read More
Loss from Epilepsy: Traditions can be altered
Our world revolved around seizures; therefore, many of our family “traditions” were altered. Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives. This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized. As time progressed, though, we learned … Read More
Epilepsy Stigma: Why Leila is tackling this obstacle in her own way
Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned.… Read More
Meet Shelby: Connecting on loss from epilepsy
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More