Our world revolved around seizures; therefore, many of our family “traditions” were altered. Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives. This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized. As time progressed, though, we learned … Read More
How many of you wear medical ID bracelets? Do you know someone who wears one? How long did it take to wear one? For me, it took quite a few years.… Read More
I’m going to be 21 in a few months and generally, Epilepsy aside, I am in a pretty healthy condition. Just recently I was given the all clear for working with Epilepsy. That means I am fit to work even though I still having a seizure every now and then. But that’s … Read More
This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy … Read More
Epilepsy Storylines App puts control back your hands Living Well With Epilepsy has now launched Epilepsy Storylines on the App Store℠ for iPhone® and iPad®. Epilepsy Storylines is, an app that lets users track seizures, medication side-effects, moods, appointments and much more on their smartphone. They can then share any information within … Read More
Living Well With Epilepsy has launched a new mobile and web app just in time for Purple Day. The app, called Epilepsy Storylines, is designed to help people living with epilepsy as they manage their daily routines and communicate with their caregivers. This app is possible thanks to a partnership with Self … Read More
I was born in 1952, and back then, it was still illegal for a woman with epilepsy to get married. When I was young, all I could think about was getting married and becoming a mother.… Read More
UPDATE: The response to the pilot testing has been outstanding. We are no longer accepting submissions. Living Well With Epilepsy is partnering with Self Care Catalysts to build an epilepsy digital application. We are looking for volunteers to participate in a brief pilot test of the application. We need feedback from people living … Read More