This Week in Epilepsy

This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy around the world. Halfway through the meeting I found myself a little disheartened with the state of neurology.

World leaders in neurology

While I was there I was invited to attend a meeting with the World Federation of Neurology leadership. I was the only skirt at the table. If any of you know me at all, you know that I am not a shrinking violet. Around the table there were several people from the International League of Epilepsy, one from the US, and one from Africa. As a person with epilepsy, an advocate for those living with epilepsy and a dedicated administrator in the neurology community, I walked away from that meeting with my energy restored. The people around that table showed their commitment to making a difference in the lives of people like you and me.

#LivingWellChat in May

I also spent time this week talking with the people from Self Care Catalysts, who developed the Epilepsy Storylines app. People are continuing to download the app at higher rate than I ever anticipated. To keep the momentum going, we are in the process of scheduling a live twitter chat for anyone who is using the app or thinking about using the app. A chat like this will be a great way to ask others who are already using the app how they like it. I have to say though, the feedback has been amazingly positive. Just check out the testimonial on our homepage.

If you have not participated in one of our #LivingWellChats yet check out the transcript from our most recent chat with Dr. Rosalind Picard the chief scientist behind the Embrace Watch. You can find the transcript at http://twubs.com/livingwellchat. I will be sure to keep you in the loop when the date is set. We are thinking early May.