Throughout the month of July, we’ll be making time to get outside. After a busy Epilepsy Blog Relay month it’s time to get some fresh air. All month we will be celebrating the ways you are #livingwelloutside. We’ll be sharing stories of fishing, trips to the beach, and maybe walks with the dog.
Your stories
We want to share your stories too. How do you deal with the bright summer sun if you have TLE or Photosensitive epilepsy? How do you make travel possible when your child has LGS? How do you get to your summer desination when you don’t have your driver’s license? You can share your stories of #livingwelloutside on livingwellwithepilepsy.com.
Share your story
Get Social
Follow our hashtag #livingwelloutside on Instagram, Facebook and Twitter. But more importantly use it yourself when you are posting your amazing outdoor pics. Or even just what you have to do to prepare to go outside (sunscreen, hat, etc.).
Hope to see you #livingwelloutside!
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
William Leuthner
I’ve been living with epilepsy for 50 years. Thankfully with proper care and medication I’ve not had a seizure in many years. Sorry for missing the April 27th walk, and I would like to attend the next one. Please send a schedule of up and coming events regarding Living Well With Epilepsy.
Jessica K. Smith
Thanks for your comment! The http://walkforepilepsy.org/ is put on by the National Epilepsy Foundation. I’ve included the site so you can learn about next year’s event.
Hope you will consider sharing your story here: https://livingwellwithepilepsy.com/share-your-epilepsy-experience
Thanks!
Jessica