Epilepsy stories from around the world.
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Kat’s Story Kathryn writes the blog, Kat’s Temporal Lobe Diaries. Kat writes, “Unfortunately I have seizures. It’s simply a part of my life, as much as every other thing.” She goes … Read More
Dear Mum, You were there to hold my hand on my way to the first of many tests for Epilepsy diagnosis. The one who smiled at me with so much love to ease my fears through the old door window as I lay there all wired up to the EEG. You laughed … Read More
In the early days I sometimes came across the statistic that up to one third of individuals with autism will also eventually be diagnosed with epilepsy. I never dismissed it, but I never dwelled on it, either – until it became a reality for us.… Read More
Recently, someone asked me to talk to a small group. I wanted to choose a story that is inspiring, something that would relate to these young adults, and something that would stick with them as they started a new journey. I couldn’t help but wonder: is epilepsy my only story? Is this how people identify me…as the girl with epilepsy who ended up doing well in life, despite doctors telling me I may not?… Read More
I find myself trying to make the best of my hell-a-coaster days because it takes almost everything in me to function at full potential these days. It’s like my mind and body are working on two different universes and working against each other. … Read More
There are many reasons why people are either fearful or nervous to try romantic relationships with a chronic illness. I thought the best way to explain this would be to share some tips that I have found along the way.… Read More
Once a month, I plan to bring to light an incredible news story and how it relates to all of us affected by epilepsy. For starters, just last week in Texas, an organization had its very first harvest of medical marijuana. … Read More
Sara’s Story: Getting around without a car (with kids!)
If someone had told me a year ago that in 12 months we would be doing most of our daily traveling by electric bike, I would have laughed. I live in Portland, and have a 3-year-old and a 5-year-old. It rains here for about 5 months out of the year. But, it happened. … Read More