Sheri’s Story: Learning to Live All Over with Refractory Epilepsy
Sheri was diagnosed with refractory epilepsy in her late 20’s. She keeps a positive attitude, but transportation can be difficult.… Read More
Epilepsy Blog Relay: Finding a New Doctor while Living with Epilepsy
It was back to the drawing board for me. I was left wondering if I could get lucky twice when it came to choosing a new doctor while living with epilepsy.… Read More
Epilepsy Stigma: Afraid to tell others about epilepsy
Stigma is still an issue for those living with epilepsy. So, it’s understandable why we are afraid to tell others about our condition. Let’s talk about epilepsy stigma.… Read More
Is it a seizure or a dream?
You know that dream where you realize you are naked or nearly naked in a public place… the one where you are barefoot walking down a long hallway in a large hotel with no idea why you are there? Here’s the thing, it happened to me and it was a seizure.… Read More
Life after an epilepsy diagnosis: Rafaela reminds us, we can be happy
Rafaela has shared her story to show that is possible to have an amazing life after an epilepsy diagnosis.… Read More
A Lifetime with epilepsy and a little help from VNS Therapy
Betty Gail’s Story My journey with epilepsy began at the very young age of 6 months old. I contracted meningitis, and needed brain surgery to remove fluid that had built up on my brain. Then at about the age of nine, the seizures started. My doctors always assumed that they came from … Read More
Epilepsy and Pregnancy – what to expect
Abby gets honest about her own epilepsy and pregnancy. She wants women to know what to expect when they head into pregnancy with epilepsy.… Read More
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More