Blog Relay to mark Epilepsy Stigma Awareness Month

Epilepsy Stigma Awareness Month

For the past few years, Living Well With Epilepsy has dedicated June as Epilepsy Stigma Awareness Month. This year we are getting the epilepsy community involved through a blog relay. For this to succeed we will need 30 bloggers/advocates/family foundations/epilepsy affiliates who are willing to post ONE day in June on the topic of epilepsy stigma. That’s it, just one post.

Who can participate?

There’s no limit to who can participate. Your site can be a personal blog, a family foundation, a research project, an epilepsy affiliate or more.Your post can be a personal story, an interview, information on an event, just make sure it relates back to epilepsy stigma. Then you need to include a link to the next post in the relay. That’s it.

In less than 24 hours of outreach we had commitments from 5 groups and had an overwhelming response on Facebook.  Don’t miss your opportunity.

Important Details

Start by confirming your participation so we can recognize your efforts. Then, write one post during the month of June on the topic of Epilepsy Stigma. Finally, link to the next day’s blog in the relay. Seriously, it’s that easy. I also encourage you to comment on the blog posts that inspire you.

How will I know which day I need to post?

When you confirm your participation you will be asked to identify your three top choice dates. We will try to schedule everyone on a day they want to post. If we have more than 30 people interested in participating we can have multiple people on one day. If not then it is first come first serve.

What do bloggers get?

Since Living Well With Epilepsy is an all volunteer operation, you will get the following:

• Increased traffic to your site
• Increased awareness on a topic you care about
• Some tools to make it easier to connect with other bloggers

Will You Blog on Epilepsy Stigma in June?

Participate

Don’t want to blog, but want to participate?

• Encourage your favorite blog to join the relay
• Ask your local epilepsy affiliate to join the relay
• Contact your local media outlet about the effort
• Comment on posts that inspire you during the relay

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

See Full Bio

Epilepsy