This coming November will be Epilepsy Awareness Month. But I wonder, will this be another year without any mention of epilepsy in the news? I hope not. It would be great to tackle the stigma and take on a campaign similar to Stand Up 2 Cancer. For now though, Epilepsy Foundation offices … Read More
Last year we were completely freaked out about H1N1. There were fights over who would get the vaccine. People were wearing masks, and hand sanitizer could be found everywhere. AES, CURE, Epilepsy Foundation, Epilepsy Therapy Project and FACES even joined together in support of public awareness on H1N1 virus risks in children … Read More
Heading back to school with epilepsy can be stressful. But I have come across a site that can be a resource to parents, teachers, family and friends. The site is called Epilepsyclassroom.com. It opens with a welcome from Greg Grunberg of Heroes, founder of the site TalkAboutIt.org. The site was designed by … Read More
Governor Chris Christie has signed a bill to establish the New Jersey Epilepsy Task Force. This statewide task force will develop recommendations to educate the public and healthcare professionals about epilepsy and treatments as well as to address the psychosocial issues, such as depression, discrimination and stigmatization. The Act (S1928) was sponsored … Read More
Ah, the warm summer breeze. The smell of cut grass and bug spray. It’s that time of year again when kids from all over will head to camp. But what about the kids that have seizures every day? These kids can’t go to camp, right? Or can they? Well, it turns out … Read More
Where does research money go when it isn’t put toward epilepsy? Obviously in these trying economic times those dollars are spread thin. But I thought it would be interesting to look at which areas are benefitting most. NIH released a report in February providing a detailed account of which diseases and conditions … Read More
In a much talked about biography of Emily Dickinson, Lives Like Loaded Guns, Lyndall Gordon poses the question, “Did Emily Dickinson have epilepsy?” According to Gordon, a senior research fellow at St. Hilda’s College, Oxford, Dickinson is both ambivalent and truthful about what she calls her sickness. Gordon says, “Her handicap or … Read More
This article was originally published in 2010. As of December 2013 estimates of SUDEP, are closer to a range of 5.5% – 18%. What is SUDEP? According to the Danny Did Foundation, Sudden Unexplained Death in Epilepsy (SUDEP) refers to the unexpected death of a seemingly healthy person with epilepsy, where … Read More