Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.
5 things my cancer diagnosis taught me about how to live better with epilepsy.
FDA offers renewed hope for families facing rare disease with the launch of the Accelerating Rare disease Cures (ARC) Program
Chantal has been battling epilepsy for 19 years with the help of VNS. She shares a recent letter to her epilepsy.
Accepting epilepsy as a part of my everyday life only happened when I felt the slightest bit of control and ownership over this new obstacle.
When warmer weather rolls around I begin to wonder does hot weather affect epilepsy? Well, turns out I wasn’t the only one wondering.
You may have heard about the Dirty Dozen and the Clean Fifteen. What I didn’t realize is the Environmental Working Group (EWG) updates this list each year. And that there may be a link between epilepsy and pesticides. Some of you know that I’ve been spending a little more energy focusing on … Read More
As I began digging deeper into the history of disease stigma, I learned more about how the first lady has impacted stigma in a variety of disease states.