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rare disease

Home » Epilepsy Blog » rare disease
18 Jun 2022

Epilepsy Blog Relay: Avery’s Fight With Nonketotic Hyperglycinemia (NKH)

by Guest Contributor |

Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia).

EpilepsyAwareness, EpilepsyWarrior, GLDC Gene, GlycineEncephalopathy, NKH, rare disease
11 May 2022

FDA offers new hope for families facing rare disease

by Jessica K. Smith |

FDA offers renewed hope for families facing rare disease with the launch of the Accelerating Rare disease Cures (ARC) Program

rare disease, rare epilepsy

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Pequea Valley's Peyton Henshaw talks about playing basketball with epilepsy [video]
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Pequea Valley's Peyton Henshaw talks about playing basketball with epilepsy [video]

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