Epilepsy Blog Relay: Avery’s Fight With Nonketotic Hyperglycinemia (NKH)
Avery was born with Nonketotic Hyperglycinemia (NKH), a disorder characterized by high levels of a molecule called glycine in the body (hyperglycinemia).
FDA offers new hope for families facing rare disease
FDA offers renewed hope for families facing rare disease with the launch of the Accelerating Rare disease Cures (ARC) Program