Tri Harder: Michael Poole, triathlete living with epilepsy
If you haven’t heard of him already, Michael Poole is a 23 year old triathlete living with epilepsy who can claim 6 podium finishes and 2 wins during the 2014 season. … Read More
Lemonade for Livy: Crowdsourced FUN-draising
Jon Scheinman and his family are more loving and more energetic than any family I’ve met in a long time. They have kicked off a national effort called “Lemonade for Livy,” to raise funds which will go to the Epilepsy Foundation to support epilepsy research. How it all started Lemonade for Livy … Read More
Meet Emily, Living Well’s new writer
I am pleased to introduce you to Living Well With Epilepsy’s new contributing writer, Emily-Sian Donoghue. You may remember her from a few of her personal stories.… Read More
Emily’s Story: Managing intractable epilepsy with RNS
Emily is a normal, optimistic, 21 year-old college student. The only thing holding her back is uncontrolled seizures. Now with the help of the RNS System she has a fighting chance at her dreams.… Read More
NJ Task Force on Epilepsy wants to hear from you
Now in their second year, the members of the NJ Task Force on Epilepsy continue to hold public hearings and to gather information. If you live in the state of New Jersey and are affected by epilepsy here are a few ways you can get involved.… Read More
Tim’s Story: All we have is now
I have learned through my own research that it can be tough to find examples of other people living with conditions similar to your own. When there are so many different things that can cause epilepsy, it can be overwhelming to weed through the information that doesn’t apply. … Read More
Smiles to Fight Stigma
People with epilepsy have been dealing with stigma for centuries. This negativity has caused loss of jobs and relationships, hampered treatment, limited research funding, and has even brought about severe physical harm in some cases. In an effort to drive change, we will dedicate June to Epilepsy Stigma Awareness Month as we did last year.… Read More
Living Well Founder Selected to Judge Web Health Awards
Jessica Keenan Smith, Founder and Managing Editor of Living Well With Epilepsy, a online resource for people living with epilepsy, has been selected to judge the 2014 Web Health Awards. This will be the fourth year running, Smith has been invited to judge this prestigious award.… Read More