Epilepsy Stigma We are now in week three of the #EpilepsyBlogRelay. We have had a few requests from additional sites to join in the relay. If you are interested in participating with a post on epilepsy stigma here’s how you can join: Add the following to the beginning of your post: This … Read More
Epilepsy Stigma We are now in week two of the #EpilepsyBlogRelay, which is designed to shine a spotlight on epilepsy stigma. Throughout the month of June, epilepsy bloggers and organizations from #Philly to #Cameroon are writing about #stigma on their own sites. Here’s a recap in case you missed any of this … Read More
Epilepsy Stigma This week Living Well With Epilepsy launched the first #EpilepsyBlogRelay to shine a spotlight on stigma. Throughout the month of June, epilepsy bloggers and organizations from #Philly to #Cameroon are writing about #stigma on their own sites. These sites are linked through a common desire to reduce stigma for those … Read More
Epilepsy Stigma Awareness Month For the past few years, Living Well With Epilepsy has dedicated June as Epilepsy Stigma Awareness Month. This year we are getting the epilepsy community involved through a blog relay. For this to succeed we will need 30 bloggers/advocates/family foundations/epilepsy affiliates who are willing to post ONE day … Read More
This was a busy week for Living Well With Epilepsy. I was invited to speak at the BIO International Convention, which is hosted by the Biotechnology Industry Organization (BIO). We’ve been preparing for our May #LivingWellChat on May 11. And, I was invited to judge the eHealthcare Leadership Awards again. These are all great opportunities to increase epilepsy awareness.… Read More
What is #livingwellchat? #LivingWellChat is a conversation that takes place quarterly on Monday evenings starting at 8pm ET, on Twitter. Each chat covers a topic relevant to those of us living with epilepsy. What will this next chat be about? We will be chatting with the team from Self Care Catalysts who … Read More
This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy … Read More
Epilepsy Storylines App puts control back your hands Living Well With Epilepsy has now launched Epilepsy Storylines on the App Store℠ for iPhone® and iPad®. Epilepsy Storylines is, an app that lets users track seizures, medication side-effects, moods, appointments and much more on their smartphone. They can then share any information within … Read More