November is National Epilepsy Awareness Month—a time to amplify the voices of the 3.4 million Americans living with epilepsy. Advocacy is crucial, helping to dispel myths and foster understanding. … Read More
The CURE Epilepsy team has invited me to share info on a fundraising event they are hosting in NYC in honor of Epilepsy Awareness Month. This unique event will feature famous soprano Renée Fleming in conversation with a neurologist, a music therapist, and our immediate past board chair Kelly Cervantes about the … Read More
RISE: A Clinical Trial For Epilepsy I recently had the opportunity to speak with Jason Lerner, MD, Medical Director Research and Development at Biohaven, a board-certified pediatric neurologist and epileptologist about his role and about RISE: A Clinical Trial For Epilepsy. Background on Dr. Lerner Before joining Biohaven in the spring of … Read More
When faced with the problem of how to find a neurologist for epilepsy, the challenge can feel daunting. So, I thought I’d share my process.… Read More
A Seizure Action Plan is a personalized plan for people living with epilepsy. It tells others how to respond on your behalf during a seizure. … Read More
JenVon shares her story about living with epilepsy, becoming an advocate in the community, and the treatment she found that works for her. … Read More
Mindfulness is a powerful DBT skill that can significantly enhance your ability to manage epilepsy by detecting early seizure signs.… Read More
Epilepsy Worldwide Since I’ve been living with epilepsy for 40 years, and I’ve worked in health advocacy for more than 25, I can confidently say it’s time for the epilepsy community to get it together when it comes to reporting how many people are living and dying as a result of epilepsy … Read More