Delta Variant: It’s time to stock up on a few more face masks
With the Delta variant and the rise in COVID-19 cases, is anyone else feeling like it’s time to add a new set of face masks to the wardrobe?
Naomi shares Ethan’s story of ARX, a rare genetic disorder
Naomi’s Story Naomi’s blog, Ethan’s Stars, shares stories from their family and from Ethan’s life with Aristaless Related Homeobox or ARX. It took the family two years to get the diagnosis of ARX, a rare genetic disorder which causes epileptic seizures and developmental delay. According to Naomi, “Every year Ethan continues to … Read More
Clair and daughter Riley give tips on epilepsy first aid
Five yr. old Riley has an amazing understanding of epilepsy and epilepsy first aid. Don’t miss this video where Riley explains epilepsy first aid. Claire has shared her top 5 tips for explaining epilepsy with kids.
Shareable Quotes from Epilepsy Blog Relay Stories
Here are a few great quotes from this month’s Epilepsy Blog Relay stories. Feel free to share these on social media. Each image links through to the full story.
Why was the June Epilepsy Blog Relay Delayed Until July?
I am planning to run the Epilepsy Blog Relay this July to fulfill the promise I made to you and to myself. I hope you will follow along.
In gratitude for my epilepsy
So much has happened in my world with a family health crisis during a pandemic, I wanted to share a little about my perspective on gratitude.
Virtual Epilepsy Education Conference to Celebrate Purple Day
The virtual epilepsy education conference to celebrate Purple Day will take place March 24-26. The free conference will include educational and advocacy sessions as well as a virtual expo.
Absence Seizures Won’t Keep Andrea from Becoming a Full-Time Musician
Andrea has learned to cope with epilepsy and not let it get in the way of her aspirations to be a full-time musician. In fact, the group has recently released a beautiful piano cover of Boston’s “More Than A Feeling.”