Much needed rest for epilepsy caregivers
Rachel, a caregiver to 4 children including one son living with Lennox Gastaut Syndrome (LGS), got a much needed break through A Mother’s Rest.… Read More
Balancing uncontrolled epilepsy and exercise
I have uncontrolled epilepsy and a trigger for me is intense exercise. This has caused frustration, especially now that I am a mom, but I never let it stop me from exercising.… Read More
Epilepsy Blog Relay: Time for a little compassion in epilepsy
This post is part of the Epilepsy Blog Relay™. Kenny’s Story One thing that you should never say to someone with epilepsy is, “You’ll be okay, I’m sure!” Only recently, has this been getting on my nerves. I have to go in to get another EEG. I have aged out of pediatrics and they want … Read More
Epilepsy Blog Relay: Focal Seizures with Todd’s Paralysis
This post is part of the Epilepsy Blog Relay™. Stephanie’s Story I was first diagnosed with epilepsy almost one year ago at age 49. I quite literally thought I was having a stroke so I went to the Emergency Room. After the ER visit I was referred to a neurologist for follow up. In the … Read More
Epilepsy Blog Relay: Living with VNS and RNS
This post is part of the Epilepsy Blog Relay™. Lauren’s story I’m 36 now and had my first seizure when I was 23 in my sleep. Why? Who knows. There’s still no clear answer about anything. VNS and RNS I have the VNS and the RNS and the seizures still overpower both of these gadgets. … Read More
Epilepsy Blog Relay: Katy’s experience with Myoclonic Epilepsy
I was diagnosed with epilepsy in 2013, at the age of 24. I have juvenile myoclonic epilepsy and experience tonic clonic seizures.… Read More
Epilepsy Blog Relay: Leonieke lives with a thick fog until she gets VNS in Belgium
This post is part of the Epilepsy Blog Relay™. Leonieke’s Story When I was 9 my dream of joining the navy was crushed. I was told that I’d probably never be able to drive. I was also told if I wanted to have kids I’d need to consult my neuro at least 1 year before. … Read More
Epilepsy Blog Relay: Will Drum for a Service Dog
Brett decided that he needed a service dog. So Brett decided to take matters into his own hands (literally) and raise money with a drum performance online.… Read More