On being resilient when it all seems to be too much
Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition.… Read More
Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.… Read More
Raising epilepsy awareness in Uganda
This year has been so difficult for everyone, but for people living with Epilepsy in Uganda the situation has become unimaginable. Gideon Ronie is doing something about it to support what he refers to as the Epilepsy Awareness Uganda family.… Read More
Edward shares his experience with epilepsy and assistance dogs
Edward has been fighting a battle with epilepsy for over thirty years. But life changed for the better thanks to his assistance dog “Zern”, a Labrador Retriever.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
Managing stress with yoga during the pandemic can help with seizure control
Kenny was surprised to find that yoga helps him manage stress and keeps him active. He also finds yoga helps him to be productive and provides restful sleep.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Dravet Syndrome Foundation Spain announces call for Innovative Research Projects in Advanced Therapies
Thank you to our media partner Dravet Syndrome Foundation Spain. They have shared their call for research projects in both english and spanish.… Read More