Sudden Unexplained Death in Epilepsy (SUDEP), refers to the unexpected death of an otherwise healthy person with epilepsy, where no cause of death can been found.
In this episode, What the EF podcast tackles an audience-requested topic: SUDEP. There are so many questions, and Dr. Kim Pargeon guides through all of them. Available on your favorite streaming service! YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible Stay in touch with What the EF by following us on … Read More
The Danny Did Foundation (DDF) has worked tirelessly since 2010 toward its mission to increase awareness of Sudden Unexpected Death in Epilepsy (SUDEP).… Read More
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.… Read More
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).… Read More
The doctor asked if I knew I had a pretty good size tumor or Adenoma, on my Pituitary Gland after I woke from seizures that progressed into a diabetic coma.… Read More
DYK? SUDEP is the most common disease-related cause of death in people with epilepsy. By having early conversations and educating patients and families on #SUDEP, we can work with them on the modifiable risk factors (AEDs adherence and adverse events). Read more on the connection between patient education and seizure freedom.… Read More
After the loss: Tonya always thought, because she was older and had more seizures, SUDEP would steal her away first. Instead, the family lost Jesy to SUDEP in 2012.… Read More
Leila attended her first PAME conference and found it was a meaningful way to connect with others in the epilepsy community to discuss SUDEP.… Read More