Check out these three epilepsy awareness superstars. They are making a difference for women, children and teens living with epilepsy, each in their own unique way.
More than 1 million women in the U.S. have epilepsy. Unfortunately, many are unaware that they face issues exclusive to their female bodies. These issues are in relation to seizure frequency and anti-epileptic drug effects on hormones, birth control, pregnancy, bone health, psychiatric diagnoses, and other co-morbidities.
Alexis and Eliana of Wonder Women:
Alexis and Eliana, two young women with epilepsy, have come together to create WONDER WOMEN: Empowered Women with Epilepsy. Their mission is to create a community that empowers women of all ages living with epilepsy through education, advocacy, and the opportunity to share experiences.Visit Wonder Women
EXCERPT: “People constantly tell me that they are praying for a miracle for Virginia. I know they mean well. But I think when we’re waiting for miracles, we’re often missing the everyday miraculous that already surrounds us
Don’t get me wrong, a cure would be great. Seriously, Jesus. Awesome. Bring it on. But praying for a cure, waiting for a simple solution, can make us myopic. We focus on what needs fixing instead of what’s already working; what we lack, instead of what we have.” Read More
Kate Neale Cooper of Fits+Starts:
Epilepsy Awareness Squad
EXCERPT: “My name is Jen Annett. I am a wife, a mother, a professional triathlete, an employee, and I have epilepsy.
I started having simple partial seizures (also known as Auras) after I got hit by a car in 2008 while I was on my bike, training for the Ironman World Championships in Hawaii. I continued to have these “spells,” which went undiagnosed, for 2 years. The doctors just kept brushing these “feelings” off as electrolyte imbalances from my training. I continued to race triathlon and Ironman, and it wasn’t until December of 2010 that I had my first Grand Mal Seizure.” Read More
Catie and Dan of the Epilepsy Awareness Squad:
The Epilepsy Awareness Squad was created in June of 2013 by Caitie Shaw and Dan Nixon after Caitie spent a week in BC Children’s Hospital for her Epilepsy. We felt there was a need to increase awareness of the disorder and combat the stigma often associated with it. As a youth initiative, we are determined to decrease the stigma and rumors surrounding Epilepsy. We do this through educational and outreach initiatives. We offer presentations to schools, participate in community events and host various fundraising activities in our community. We also maintain an active online presence.
Visit Epilepsy Awareness Squad
Check back for more featured epilepsy awareness superstars!
Founder and CEO
Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.
Leave a Reply