Leila’s Ideas: Stigma in the Workplace
Epilepsy stigma can be a legitimate concern in the workplace but having a job is more about showing off your abilities.… Read More
Medical ID Bracelets: Where do you stand on the issue?
How many of you wear medical ID bracelets? Do you know someone who wears one? How long did it take to wear one? For me, it took quite a few years.… Read More
Emily’s Perspective: Back to the working world
I’m going to be 21 in a few months and generally, Epilepsy aside, I am in a pretty healthy condition. Just recently I was given the all clear for working with Epilepsy. That means I am fit to work even though I still having a seizure every now and then. But that’s … Read More
Epilepsy Stigma: Why Leila is tackling this obstacle in her own way
Epilepsy stigma is a societal problem. Addressing people one-by-one is helpful, and I hope they teach others what they have just learned.… Read More
Scott’s Story: Neurosurgery Part 1 – Long-Term Monitoring
This personal story is Part 1 of a series of posts where Scott will chronicle his experience beginning with long-term monitoring and culminating in a brain surgery to manage his epilepsy. I hope you enjoy getting to know Scott’s story and benefit from his experience as much as I have. Scott’s Story … Read More
Emily’s Perspective: At the Young Epilepsy Awards 2015
On Thursday 26th March 2015, I had the incredible opportunity to attend the Young Epilepsy Champion Awards at the London City Hall to represent Living Well With Epilepsy. I write monthly columns for Living Well with Epilepsy and it was an honor to attend the awards on behalf of the founder, Jessica … Read More
Are anticonvulsants the only option?
Anticonvulsant medication can control seizures in most people with epilepsy, but for about 30% of patients, they either aren’t effective or are intolerable. There are other options to consider in these cases. They include: Epilepsy Surgery, Diet, Nerve stimulation, and Counseling. Option 1: Epilepsy Surgery What is epilepsy surgery? In some cases, … Read More
Debbie’s Story: Noel and the Angel Wings Foundation
This personal story was contributed by Debbie Fincher, mom to Noel and Board Chair and Founder of the Angel Wings Foundation, an organization which is creating a new housing model for people living with epilepsy in need of long term support. … Read More