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Epilepsy Blog Relay™: It’s time for another #LivingWellChat

This post is part of the Epilepsy Blog Relay™ which will run from Nov 1 to Nov 30, 2017. Follow along!

Don’t miss #LivingWellChat

At the end of every Epilepsy Blog Relay™, we close with a live #LivingWellChat. Join us on Nov 30, at 7pm ET to celebrate and connect with some of our fantastic bloggers. The chat lasts about 1 hour. Just use the hashtag #LivingWellChat to filter out all the other social noise on twitter and join the conversation!

 

This Month’s Topic: Epilepsy and Stigma

Throughout the chat we will touch on the following:

Q1: Do you believe there is a positive or negative stigma around epilepsy?

Q2: What kind of stereotypes do you think exist about people with epilepsy?

Q3: Are you willing (is it easy for you) to talk about epilepsy?

Q4: What did it feel like when you (or your loved one) were first diagnosed?

Q5: What are some pretty common worries you think people with epilepsy live with today?

Q6: How can we change the conversation to make the discussion more open?

 

Click below to participate

http://tweetchat.com/room/livingwellchat

How does the chat work?

Lots of Twitter chats have a formal structure, only allowing a few minutes per question, but #LivingWellChat is more open. You will find #LivingWellChat is very simple: We start with a general topic, and the conversation flows from there. We encourage spontaneous discussion with tons of Q&A.

 

Participating in the November #LivingWellChat

1. Go to http://twubs.com/livingwellchat OR http://tweetchat.com/room/livingwellchat
2. Be sure to log in using your twitter account **IMPORTANT**
3. Set the chat speed as fast or slow as you prefer
4. The Twitter feed will pop up with all the #LivingWellChat tweets.
5. Be sure to introduce yourself when you come on the chat
6. Join the conversation

I really like Twubs, but some people prefer Tweetchat. Others prefer to participate within Twitter. It’s up to you!

 

Follow along even if you don’t have a twitter account

You won’t be able to chime in with your own comments but here are two ways to follow along:

Option 1: Go to the Living Well With Epilepsy Facebook page and click on the Twitter tab.

Option 2: Go to https://livingwellwithepilepsy.com and watch the chat in the footer of the home page.

 

Can anyone join in the conversation?

Join in the conversation! Whether you have been living with epilepsy for decades, or if you are newly diagnosed, you and your loved ones will find something of interest on the next #LivingWellChat.

author avatar
Jessica K. Smith Founder and CEO; Executive Director
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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