The glitterati of Philadelphia were out on Friday February 8, to support the Epilepsy Foundation of Eastern PA. Despite the snow and wind, the guests looked fabulous as did the space.
Allison McCartin, Executive Director noted, “I’m pleased to report that we surpassed our goal.” This year, the EFEPA is launching Keys to Independence, a program specifically designed to help Young Adults with epilepsy transition into adulthood. The program will provide workshops and supportive events that encourage participants to build leaderships skills, personal strengths, and become a participating member in the wonderful community of peers that surrounds them.
The food and music made for a festive atmosphere and the attendees enjoyed the opportunity to reconnect with one another.
I took a moment to speak to Gregory Osberg, former CEO of Philadelphia Media Network, and asked about his connection to epilepsy. He mentioned his son’s epilepsy and noted, “We take each day as it comes.”
About EFEPA
The EFEPA is a nonprofit, 501(c)(3) voluntary health organization dedicated to meeting the non medical needs of those with epilepsy. For more information, please visit www.efepa.org.
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
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