Leila’s Ideas: Stigma in the Workplace
Epilepsy stigma can be a legitimate concern in the workplace but having a job is more about showing off your abilities.… Read More
Blog Relay to mark Epilepsy Stigma Awareness Month
Epilepsy Stigma Awareness Month For the past few years, Living Well With Epilepsy has dedicated June as Epilepsy Stigma Awareness Month. This year we are getting the epilepsy community involved through a blog relay. For this to succeed we will need 30 bloggers/advocates/family foundations/epilepsy affiliates who are willing to post ONE day … Read More
Loss from Epilepsy: Traditions can be altered
Our world revolved around seizures; therefore, many of our family “traditions” were altered. Epilepsy wasn’t an “if” it was a “when”, “where” and “how” in our lives. This was magnified on holidays and events through the stages of Clayton’s journey, especially when he was first hospitalized. As time progressed, though, we learned … Read More
Medical ID Bracelets: Where do you stand on the issue?
How many of you wear medical ID bracelets? Do you know someone who wears one? How long did it take to wear one? For me, it took quite a few years.… Read More
This Week in Epilepsy: May 10 2015
This was a busy week for Living Well With Epilepsy. I was invited to speak at the BIO International Convention, which is hosted by the Biotechnology Industry Organization (BIO). We’ve been preparing for our May #LivingWellChat on May 11. And, I was invited to judge the eHealthcare Leadership Awards again. These are all great opportunities to increase epilepsy awareness.… Read More
May 2015 #LivingWellChat: On Using Epilepsy Storylines
What is #livingwellchat? #LivingWellChat is a conversation that takes place quarterly on Monday evenings starting at 8pm ET, on Twitter. Each chat covers a topic relevant to those of us living with epilepsy. What will this next chat be about? We will be chatting with the team from Self Care Catalysts who … Read More
Emily’s Perspective: Back to the working world
I’m going to be 21 in a few months and generally, Epilepsy aside, I am in a pretty healthy condition. Just recently I was given the all clear for working with Epilepsy. That means I am fit to work even though I still having a seizure every now and then. But that’s … Read More
This Week in Epilepsy
This week the neurology community gathered in Washington, D.C. at the American Academy of Neurology Annual Meeting. I attended the meeting in my role as Director of Education and Membership for the American Neurological Association (my day job). While I was there, I had several opportunities to discuss the state of epilepsy … Read More