Live on WHYY: Jessica Keenan Smith talks about epilepsy
If you missed the broadcast, check out the recording of Jessica Keenan Smith, founder of Living Well With Epilepsy, as she talks about epilepsy on WHYY.… Read More
Debbie’s Story: Noel and the Angel Wings Foundation
This personal story was contributed by Debbie Fincher, mom to Noel and Board Chair and Founder of the Angel Wings Foundation, an organization which is creating a new housing model for people living with epilepsy in need of long term support. … Read More
Paula’s Story: Sage advice from a mom with epilepsy
I was born in 1952, and back then, it was still illegal for a woman with epilepsy to get married. When I was young, all I could think about was getting married and becoming a mother.… Read More
Meet Shelby: Connecting on loss from epilepsy
Shelby Myers has offered to write from her own experience on Loss from Epilepsy. I hope you will take a minute to connect with Shelby and her story.… Read More
Emily’s Perspective: Help your child through an EEG
Recently I have had a lot of questions on my Facebook page about how parents can help their young children with epilepsy and how to keep them calm during an EEG. Parents are often unfamiliar with the test and don’t know how to plan or prepare their child. What is an EEG? … Read More
Are you an epilepsy mommy?
We are now looking for someone to cover the Epilepsy Mommy column. You could be a mom living with epilepsy or a mom to a child with epilepsy. … Read More
Meet Leila: Tackling stigma, one post at a time
I’ll be tackling stigma associated with epilepsy. Why? Well, Epilepsy remains largely untouched in society as a whole. Even among my peers, I have found old myths that are still believed to be true. … Read More
Pilot test the Living Well With Epilepsy App
UPDATE: The response to the pilot testing has been outstanding. We are no longer accepting submissions. Living Well With Epilepsy is partnering with Self Care Catalysts to build an epilepsy digital application. We are looking for volunteers to participate in a brief pilot test of the application. We need feedback from people living … Read More