This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Rich’s Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. … Read More
Dear Mum, You were there to hold my hand on my way to the first of many tests for Epilepsy diagnosis. The one who smiled at me with so much love to ease my fears through the old door window as I lay there all wired up to the EEG. You laughed … Read More
Reflecting on my life with epilepsy, I remember the medications and how they made me feel, the hospital stays, and the many, many doctor appointments. This Mother’s Day, it’s time for a special thanks to my mom who was there through it all. Looking back on the early days When I … Read More
I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project. … Read More
In the early days I sometimes came across the statistic that up to one third of individuals with autism will also eventually be diagnosed with epilepsy. I never dismissed it, but I never dwelled on it, either – until it became a reality for us.… Read More
At the end of every Epilepsy Blog Relay, we close with a live #LivingWellChat. Join us on April 2, at 7pm ET/6pm CT/5pm MT/4pm PT to celebrate and connect with some of our fantastic bloggers.… Read More
A passion for creativity was something I hoped to pass on to Colleen. From a child to adult, I have always had a love for drawing, music, paint…anything in which I could create something of my own.… Read More
Recently, someone asked me to talk to a small group. I wanted to choose a story that is inspiring, something that would relate to these young adults, and something that would stick with them as they started a new journey. I couldn’t help but wonder: is epilepsy my only story? Is this how people identify me…as the girl with epilepsy who ended up doing well in life, despite doctors telling me I may not?… Read More