Life with epilepsy in high school
Jordan is 16 years old and a junior in high school and she’s had epilepsy for the past 8 years. She shares bit of what it is like to live with epilepsy.… Read More
4 Tips to help you track seizures
Jewel shares a few tips on how to keep track of your seizures. We hope this helps as you move through your own epilepsy journey. … Read More
Pro Golfer Kenzie O’Connell On Taking Control of Her Epilepsy and Fighting for Zero Seizures
STEPS Toward Zero champion, Kenzie O’Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy… Read More
Epilepsy Blog Relay: I’m tired of fighting within the epilepsy community
Frankly I’m tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work.… Read More
Epilepsy Blog Relay: Epilepsy Stigma in Teens and Adults
We’ve taken a close look at epilepsy stigma and wanted to share the similarities and differences in how teens and adults respond to epilepsy stigma in real life… Read More
Epilepsy Blog Relay: Taking on Imposter Syndrome and Epilepsy
Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She’s come up with a few ways to tackle it.… Read More
Epilepsy Blog Relay: Epilepsy and planning a family
Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey.… Read More
Epilepsy Blog Relay: My beef with SUDEP Research
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.… Read More