Epilepsy Blog Relay: Emma shares the family’s VNS story

emma murphy – Living Well With Epilepsy — March 10

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!

Emma’s Story

Emma’s blog, Little Mama Murphy, shares stories from a family living with the ‘medical mystery’, of an undiagnosed child. Stories include stressing about coming to terms with the lack of a diagnosis to videos showcasing recent successes. Emma jokes, “I’m basically using the Internet as free counselling! So far it seems to be working as I haven’t had a nervous breakdown. Yet!”

Emma Murphy’s 7 year old son Hugh has complex, drug resistant epilepsy and life threatening seizures as a result of his recently diagnosed genetic condition FOX G1 Syndrome. She blogs about their journey towards a diagnosis and their triumphs and challenges with epilepsy at Little Mama Murphy.

Check out Emma’s Post

NEXT UP: Be sure to check out the next post by Naomi at https://www.ethansstars.com/. For the full schedule of bloggers visit livingwellwithepilepsy.com.

TWITTER CHAT: And don’t miss your chance to connect with bloggers on the #LivingWellChat on April 2 at 7PM ET.

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

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