Home » Epilepsy Blog » Jessica's Posts » Words matter when you are feeling isolated and annoyed

Words matter when you are feeling isolated and annoyed

onewordWe have been talking about words on Facebook this week. More specifically, what is that one word that you would use to describe how having epilepsy makes you feel.

I was feeling a few words this week and none of them were of the positive variety. Mainly because I found out another friend, who has been struggling to regain control of her seizures, will go in for a second brain surgery. Honestly, I am tired of hearing stories of how these amazing men and women are having their creative genius stolen from them by epilepsy. It is simply not enough to feel lucky to be alive.

Needless to say, my words were not super positive this week.

Your Words

I wanted to find a way to channel that energy. So, I put out a challenge on Living Well With Epilepsy’s facebook page as a poll.

Challenge: use one word to describe how having epilepsy makes you feel

I got things rolling with a few selections, but participants had the option to add their own word. It brightened my mood when the first response came back within minutes. Sometimes it’s just nice to know I’m not just whistling into the wind.

Some Shared

Within 24 hours the poll had been viewed by more than 700 people and had more than 30 votes. The top responses were Isolated and Annoyed. I have to say right now I feel a whole lot less Isolated, and even somewhat less Annoyed.

Now it’s your turn

If you haven’t answered the poll please take a minute to share your one word.

Thanks again guys. Your words helped.


Follow Jessica K. Smith:


Founder and CEO Jessica brings a unique perspective to this leading epilepsy blog as she was diagnosed with epilepsy as a teen. She also brings 20+ years experience in marketing.

  1. Carol sickerman
    | Reply

    people think I’m a FREAK till they get to know me, therefore, that is how I feel”ometimes, I DO EVERYTHING a ‘normal” person does but I get taken adveantge of,. A LAWYER just took advantage of me in so many ways–especiallly in the worst way you can think of.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.