Adjusting to an Epilepsy Diagnosis
Kristine shares her experience with adjusting to an Epilepsy Diagnosis. She describes her fears, denial and experience of feeling isolated.
Epilepsy – My Invisible Disability
Edward shares, “For the past thirty-three years, I have been living with epilepsy, an invisible disability.”
My Journey with Epilepsy as a Young Adult: Keep Pushing and Stay Strong!
Brooke share her experience living with epilepsy as a young adult: I love to run, read, write, explore, take pictures and try new things.
On explaining epilepsy to peers
Being an individual living with epilepsy, the one question I get a lot is, “What is epilepsy?” The scientific definition is a chronic neurologic disorder with many possible causes including illness, brain damage, or abnormal brain development.
When hope returns to a life with epilepsy
A little bit of hope has returned and grows every week, every month, like a light at the end of a long, dark tunnel as I continue parenting with epilepsy.
When a Husband Becomes Epilepsy Caregiver
My husband, Pete, and I met before my diagnosis. But, when I was diagnosed with Intractable Seizures, Pete became my life-line.
Global Epilepsy: Helping Those with Living with Epilepsy in Uganda
Gideon Ronie shares an update on his work helping people living with epilepsy in Uganda. He gives insight into how the pandemic has affected the community.
Social Connections and Epilepsy: Discovering the impact of sharing one’s story
By sharing my story I discovered the social connections within the epilepsy community. Speaking about how I overcame the fear of uncertainty of having seizure was a different kind of exposure for me.