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Epilepsy Blog Relay: Dave shares his story as a father of a child with a disability

This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along!

Dave is the father of an energetic, hockey-loving son who has refractory epilepsy. On his blog, www.epilepsydad.com, he shares his experiences as the father of a child with a disability in hopes that his words help other people who are on a similar journey. By sharing his story, Dave hopes to reach out to other parents of children with special needs to let them know that they are not alone. Below is an excerpt from one of his latest posts:

Excerpt from “A Movie Script Ending”

Our journey with epilepsy has the makings of a movie.

It has the time before. The time before epilepsy. The time before seizures. The time before medication, and side effects, and surgery.

It has the inciting event. The first seizure in the lobby of the arcade. The second seizure onboard an airplane. The “ticks” that turned out to be seizures that snowballed into status epilepticus and months in the hospital. The days when my son couldn’t talk or move. The night when my son was surrounded by a team of doctors trying to save his life.

It has an enemy and its name is Epilepsy.


NEXT UP: Be sure to check out the next post by Elaine at livingwellwithepilepsy.com for more on epilepsy awareness. You can check out any of the Epilepsy Blog Relay posts you may have missed.

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