This post is part of the Epilepsy Blog Relay™, which will run from November 1 to November 30, 2018. Follow along!
Transformations—broad, fundamental, positive, forward-moving changes – power Christalle Bodiford’s work as an epilepsy advocate, activist, and artist. Frustrated by the negativity dominating many of the “support” groups for epilepsy, Christalle founded Life Elektrik to fulfill a pivotal need among those it impacts: a positive nexus of story-sharing, education, community, and genuine support. Christalle’s epilepsy story is a tale of surprise, fear, misdiagnosis, and misdirection but one that has taken a positive turn. After a successful career in the fashion industry, she has come to see that her true mission is to work her artistic magic on human hearts – specifically, the hearts of fellow warriors struggling to live out their dreams under the often dark and stormy sky of neurological disability. This website is a space to share her personal journey – navigating the world while living with epilepsy.
Related: Self-care tips to try
Coming to terms with limitations
I read a graphic the other day that said something along the lines…”It takes a person with epilepsy five times more energy to do something than a person without epilepsy.” I tried to fact check this stat, but I didn’t have any luck. But one thing I do know is – I could definitely relate to the sentiment. Like many with epilepsy, I constantly feel tired. I can never seem to get enough rest. I wake up multiple times each night, grind my teeth while sleeping, and have anxiety that often keeps my mind racing when I should be off in dreamland. I cope in different ways, but with a busy schedule that often causes me to feel unbalanced, I’m finding self-care to be more important than ever.
NEXT UP: Be sure to check out the next post by Audra at https://ourlifewithautismsite.wordpress.com/
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