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Heated discussion about epilepsy advocacy on Bryan Farley’s blog

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Bryan Farley is a wonderful photographer, fantastic writer and dedicated epilepsy advocate. Oh yeah, and he has epilepsy too. Bryan recently started blogging on the Epilepsy Foundation’s ecommunities blog network site.

Bryan recently posted a fantastic piece on the blog network. After
reading the post and the exciting commentary that follows, I asked if he would give Living Well readers a sneak peak. Below is the first bit of Bryan’s thoughts on epilepsy advocacy. I encourage you to read the entire piece as well as the comments on his site.

Title: If all you have is a CURE, people with epilepsy become…

Author: Bryan Farley

There is a quote by Bernard Baruch that I have been contemplating lately.
“If all you have is a hammer,¬†everything looks like a nail.”

I have been thinking about the quote for several reasons. For one, I often feel as if I do not have enough tools to express myself effectively. Decades of shame have taught me how to be silent and how to be outraged, but not how to express my frustration with caring people.  I want to learn how to use a velvet monkey wrench.

The quote also illustrates how some health organizations approach epilepsy advocacy. It seems that some people only have one blunt tool; epilepsy must be CURED. Many of these advocates do not have epilepsy, yet they hammer away for a CURE. Whenever they finish hammering, I am often left feeling a little more bent and rusty than when they started.

If all you have is THE CURE, people with epilepsy become the nail.
Read more

Now it’s your turn to join in the dialogue.

Follow Jessica Keenan Smith:

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As founder of Living Well With Epilepsy, Jessica brings a unique perspective to this leading epilepsy blog. She was diagnosed with epilepsy as a teen, after having several grand mal seizures. She has 20+ years experience in marketing and you can find her on Twitter, Facebook, and Google+. Jessica also regularly speaks on the topics of Navigating Social Media and Epilepsy Awareness. Based in USA.