On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).… Read More
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.… Read More
Amanda poses a philosophical question about quality of life and epilepsy
Amanda asks us to consider how can we measure our quality of life with the overarching consideration that is epilepsy? We have struggles, unquestionably. Life is different, for every single day and will always be.… Read More
Finding real support in the online epilepsy community
Hayley has shared her experience with online epilepsy support communities to help those who are newly diagnosed with epilepsy. … Read More
My Journey with RNS Surgery: Hope for Seizure Freedom
Living with epilepsy is a challenge and finding the right treatment can be difficult. Soo shares her experience of trying medication, VNS, and RNS to treat her epilepsy.… Read More
Living with Hypothalamic Hamartoma Syndrome
It is estimated that 1 in around 200,000 people is born with a hypothalamic hamartoma (HH), an epileptogenic lesion attached to the hypothalamus.… Read More
Epilepsy Blog Relay: Focal Seizures with Todd’s Paralysis
This post is part of the Epilepsy Blog Relay™. Stephanie’s Story I was first diagnosed with epilepsy almost one year ago at age 49. I quite literally thought I was having a stroke so I went to the Emergency Room. After the ER visit I was referred to a neurologist for follow up. In the … Read More
Dose mapping and Breakthrough Seizures, What is The Link?
Every person living with epilepsy faces a different journey, but the goal is the same: freedom from breakthrough seizures.… Read More