Epilepsy Blog Relay: Story of a mother and son with epilepsy and autism spectrum
Audra, who writes Our Life With Autism, shares the life and adventures of mother and son with epilepsy and autism spectrum.… Read More
Epilepsy Blog Relay: Elaine uses poetry to cope with adversity and a life with TLE
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Elaine’s Story I was diagnosed with epilepsy at age four. At that time, early 1960s, one of the few medications available for epilepsy was phenobarbital. Concerned about negative side effects for … Read More
FDA approves Epidiolex, first medication derived from marijuana
FDA has approved Epidiolex for the treatment of seizures associated with two rare and severe forms of epilepsy, Lennox-Gastaut syndrome and Dravet Syndrome.… Read More
Epilepsy Blog Relay: Déjà Vu and temporal lobe epilepsy in real life
At 29, I began to experience mysterious episodes of déjà vu followed by nausea and exhaustion. It took doctors 5 yrs and a tonic clonic seizure to diagnose these episodes as epilepsy.… Read More
Epilepsy Blog Relay: One woman has four tonic clonic seizures on her daughters graduation day
I suffered a series of tonic clonic seizures on the day my daughter graduated from college, which also happened to be my birthday. … Read More
Epilepsy Blog Relay: One family pushing the boundaries of Lennox-Gastaut Syndrome
Lili was diagnosed with Lennox-Gastaut syndrome (LGS), a rare and severe form of epilepsy, but therapeutic horseback riding was an activity she could enjoy.… Read More
Epilepsy Blog Relay: My Grandmother and PCDH19 Epilepsy
Francesca’s Story: I have a type of epilepsy that was inherited from my mother’s mother. My grandmother was born with PCDH19 epilepsy.… Read More
Epilepsy Blog Relay: Five tips for adjusting to a medication change
Five helpful tips for adjusting to a medication change. I spoke with my doctor and we both decided that it was time to increase one of my medicines.… Read More