Check out the latest feature on Living Well With Epilepsy. Now you can share your own story right here. Just visit the Share Your Story page, fill out the form that has a place for your story right there and send it off.
We saw how important sharing just four words could be, at the Annual Walk for Epilepsy, in Washington DC. We’ve also seen what an amazing resource social media can be to families that feel isolated.
Why share?
There are so many reasons to share your story.
- Get it off your chest
- Be thankful
- Go ahead, complain
- Surprise us with your experiences
- Make a difference
What will happen to my story?
Well, that depends. Let’s see if anyone uses the feature. If you decide to use the feature then we will find a special place for your special words!
How can my story make a difference?
You never know who you might touch, who you might help, who you might move to speak out about epilepsy. It’s time for us to stop hiding in the shadows. It’s time to be loud and proud, because honestly nothing is going to change if we don’t speak up.
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
Travis
I think this is a great idea! If you have epilepsy or any type of disorder it's important to get your story out there. I just shared mine! Hopefully more people will do the same.
http://seizuresoftrav.blogspot.com
Jessica Keenan Smith
Travis,
Thanks for sharing your story!
Jessica
Manhattan Storm
http://www.themanhattanstorm.blogspot.com
One year of living a seizure nightmare before I was finally diagnosed.
Jessica Keenan Smith
Manhattan,
Thanks for sharing your story!!
Jessica