Picture a Cure for Purple Day: Deadline Extended

Do you sometimes feel like epilepsy is invisible even though it affects every part of your life? You are not alone.

Deadline Extended to March 21

In preparation for Purple Day, Living Well With Epilepsy is gathering photos of one day of treatment from readers all over the world. We have extended the photo submission deadline to March 21. We’ve also implemented a form which will allow you to send in two photos at one time.

Picture a cure

Since epilepsy is invisible, unless a seizure is happening, it is difficult to show. And let’s face it our society needs that visual impact. This project is a way to remind people that epilepsy is real and it does impact more than 65Million people worldwide.

It is time to show the world the diverse ways epilepsy is being handled. In some cases, the treatment is working. In others (25-30% according to the NINDS), treatment is not as successful.

Do any of the following sound familiar:

I take a handful of medication every day
I follow the ketogenic diet
I run on the treadmill to stay seizure free
I take vitamin D because I’m more prone to osteoporosis
I get lots of sleep, sometimes more than I’d like
I have regular EEGs

If yes, then take a picture. Use your phone or a camera or your ipad. Just take the picture and send it in using the form below.

[jotform id=”40595313073148″]

Spread the word

You can make a difference by spreading the word about this project. Tell your friends. Share on Facebook, Twitter, Pinterest and Tumblr.

Jessica K. Smith Founder and CEO; Executive Director

Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.

See Full Bio