Good Days, Bad Days, a magazine for children with chronic illness, has launched it’s inaugural issue. The magazine was established to help children with chronic illness cope with their condition. The founder, Amy Friedenberg, hopes that Good Days, Bad Days will become a publication that children with chronic illness can be proud to consider their own.
Included in this first issue is one of my stories, “My First EEG”, along with photos by Rudy Lauletta. This piece gives children an sense of what to expect before they go for their first electroencephalogram (EEG).
If you would like a copy of Good Days, Bad Days you can send an email to: amy@gooddaybaddays.net or or visit their website.
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
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