Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
Crystal Jigsaw
I just saw your link on Twitter and thought I'd come over and say Hi. I have photo-sensitive epilepsy and it has affected my life. I've been unable to drive for nearly 18 months now but am hoping and praying to get my licence back in June/July.
Best wishes, Crystal Jigsaw (Kathryn Brown)
Twitter: @CrystalJigsaw
Jessica Keenan Smith
@Crystal Jigsaw
Kathryn,
Thanks so much for your comment! I'll have to do a piece on photosensitive epilepsy. I don't think I've covered that yet.
Best,
Jessica
Sonia M
So much excellent information! Thank you!
Epilepsy Institute of NC
This is a great site. I would love to link up with you but could not find the proper location to enter our info. I can be reached at admin@eiofnc.org. We at EINC wish to 'partner' with anyone and everyone who is genuinely fighting to raise awareness. keep up the great work!!