Heading back to school with epilepsy can be stressful. But I have come across a site that can be a resource to parents, teachers, family and friends. The site is called Epilepsyclassroom.com.
It opens with a welcome from Greg Grunberg of Heroes, founder of the site TalkAboutIt.org. The site was designed by UCB and the Epilepsy Foundation with help from two experts, one in the field of neurology and the other in the field of teaching, leadership and curriculum development.
You will find tips for families such as:
* Who to tell about your child’s epilepsy
* Information your child’s teacher needs to know
* A few tools to overcome the stigma associated with epilepsy
and more
There’s also a section for teachers and schools including:
* Lesson plans broken down by grade level
* Detailed information on first aid
* How to talk about a seizure with the class
and more
All this information will can only help to make the transition to a new year (and new teacher or new school) a bit easier. I’m thinking of all of you as you head back to school.
Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
Leave a Reply