Jessica Keenan Smith is a patient advocate and epilepsy community leader with more than 15 years of experience. As Founder and CEO of Living Well With Epilepsy and Executive Director of ASENT she bridges the gap between the scientific and patient communities, with a particular focus on the needs of the epilepsies. Jessica Keenan Smith is Founder and CEO of Living Well With Epilepsy, an award winning online resource for people affected by epilepsy to share stories and access in-depth information on the disease. Since 2009, Living Well With Epilepsy (https://livingwellwithepilepsy.com) has been featured in Forbes, Wired, NBC, NPR and the cover story of Epilepsy Advocate Magazine and has partnered with companies such as UCB, Lundbeck, Sunovion, Eisai, and more. Ms. Smith is also the Executive Director of the American Society for Experimental Neurotherapeutics (ASENT) (https://asent.org), an organization that brings together leaders from industry, academia, government and advocacy who are engaged in bringing drugs and devices to market across all neurologic disease states. In this role she is responsible for leading a successful scientific journal and annual scientific conference with speakers from all over the world.
carol
I did the first question, but my page did not have a place to turn, such as an arrow or other indication.
Jessica Keenan Smith
Thanks Carol. I will figure out why and correct the problem. Thanks for letting me know!!
Jessica
Jessica Keenan Smith
Carol,
I made the box for the survey bigger. You do still have to scroll down to see all the questions. Let me know if that works better.
J
belinda Brown
I read the story of sophie and I lookied at it like big deal so she was diagnosed as a teenager try going through your entire life with epilepsy, I have and I’ve had brain surgery the VNS but still have seizures and I excepted my epilepsy when I understood it.
Jessica Keenan Smith
Belinda,
Would you consider submitting your own story? It would be good to have both stories for readers to compare and contrast. I would encourage you to write YOUR story instead of an article in response to sophie’s piece.
Just tell us about you and your experience. Let us walk a mile in your shoes (so to speak).
Thanks!
Jessica