Much needed rest for epilepsy caregivers
Rachel, a caregiver to 4 children including one son living with Lennox Gastaut Syndrome (LGS), got a much needed break through A Mother’s Rest.… Read More
Epilepsy Heroes: Cole and Katie
This blog post was submitted by Sunovion Pharmaceuticals Inc. #MyEpilepsyHero is proud to feature Cole and Katie, two amazing kids who started their own initiatives to help fellow kids with epilepsy. This #MyEpilepsyHero post is published with the permission of Cole and Katie. Cole: During a prolonged stay at a children’s hospital … Read More
Participate in the November 2020 Epilepsy Blog Relay
Living Well With Epilepsy is gearing up for our next Epilepsy Blog Relay™ which will run throughout November 2020. HOW IT WORKS There are a few ways to participate:1) BLOGGER: If you have your own blog – Participate as a blogger by posting the full story on your site and on Living … Read More
Epilepsy Blog Relay: Time for a little compassion in epilepsy
This post is part of the Epilepsy Blog Relay™. Kenny’s Story One thing that you should never say to someone with epilepsy is, “You’ll be okay, I’m sure!” Only recently, has this been getting on my nerves. I have to go in to get another EEG. I have aged out of pediatrics and they want … Read More
Hot Neurobiology Topics in Epilepsy: Climate Change and My Epilepsy?
This post is part of the Epilepsy Blog Relay™. Hot Neurobiology Topics in Epilepsy Kathryn A. Davis, MD, MSTR, Assistant Professor of Neurology at the University of Pennsylvania and member of the ILAE NBC recently had the opportunity to connect with Sanjay Sisodiya, MRCP, PhD, on the topic of climate change and the impact it … Read More
Epilepsy Blog Relay: Living with VNS and RNS
This post is part of the Epilepsy Blog Relay™. Lauren’s story I’m 36 now and had my first seizure when I was 23 in my sleep. Why? Who knows. There’s still no clear answer about anything. VNS and RNS I have the VNS and the RNS and the seizures still overpower both of these gadgets. … Read More
Epilepsy Blog Relay: Katy’s experience with Myoclonic Epilepsy
I was diagnosed with epilepsy in 2013, at the age of 24. I have juvenile myoclonic epilepsy and experience tonic clonic seizures.… Read More
Epilepsy Blog Relay: A Mother’s Perspective on Her Evolving Role as Caregiver
As a parent of two young adults with epilepsy, Carole understands the challenges that come with being a caregiver for teens with epilepsy.… Read More