STEPS Toward Zero champion, Kenzie O’Connell, and epilepsy advocate, Landis Wiedner, share about their experiences living with and managing epilepsy… Read More
Frankly I’m tired of the fighting among members of the epilepsy community. The fact that the epilepsy community is so fractured is only hindering all our work.… Read More
We’ve taken a close look at epilepsy stigma and wanted to share the similarities and differences in how teens and adults respond to epilepsy stigma in real life… Read More
Currently, Jamie is feeling a sense of imposter syndrome when it comes to her epilepsy. She’s come up with a few ways to tackle it.… Read More
Alison and husband Preston have talked about planning a family but they knew her epilepsy would mean taking some extra steps. Here she shares their journey.… Read More
Before I started treatment for Cancer, I knew my “5-yr survival rate” was 39%. Yet it’s taken ~40 years to est. 29% of deaths in epilepsy could be from SUDEP.… Read More
After seven years of struggling to get a proper epilepsy diagnosis, Laura found a neurologist who would listen. She’s now a year seizure free!… Read More
Caroline has found that managing her epilepsy has allowed her to be true to herself and focus on the creative work she is passionate about.… Read More