On SUDEP and New-Onset Refractory Status Epilepticus (NORSE)
Comedian and actor, Bob Dibuono, shares his family’s experience with SUDEP and New-Onset Refractory Status Epilepticus (NORSE).
World Health Assembly calls for global action plan on epilepsy
At #WHA73, Member States endorsed a resolution calling for global action plan on epilepsy and other neurological disorders. Learn more.
On being resilient when it all seems to be too much
Amanda encourages readers to remember we are resilient, as we manage the pandemic, seasonal changes and a chronic condition.
Three opportunities for researchers interested in developing neurotherapeutics
For the researcher interested in developing Neurotherapeutics who is looking for ways to network with experts in academia, industry, advocacy, and government here are three great opportunities.
Epilepsy in Kenyan Villages and why community matters
Rich shares his experience with epilepsy throughout Kenyan Villages. Despite fears and epilepsy myths, the community has agreed to form a Self Help Group where they meet once a month.
Four sleep strategies that work
It’s no secret that sleep and seizures are related. Sleep is like an epileptic’s drunk uncle. Most of the time he stays in line, but then there’s that wedding when he goes off the rails.
Alison shares her experience with a 16 day stereo-EEG stay
Alison shares her journey from to neurocognitive testing to her stay in an Epilepsy Monitoring Unit (EMU) for a 16-Day stereo-EEG(sEEG).
One woman’s journey with epilepsy in Zimbabwe
Lisa, who has grown up in Zimbabwe and Kenya, shares how living with epilepsy has had both a physical and psychological effect on her.