Stephen’s Story: Chef, Runner and Survivor
I have been seizure free for 14 months and feel that my epilepsy is not behind me but I should enjoy being seizure-free. … Read More
Roxanne’s Story: Epilepsy will not have a hold on me
When I was in my 20’s I had 19 tonic clonic seizures in 1 hour. I wound up in a coma for two weeks and had to relearn to talk. This was not the first time I stared death in the face. This is my story.… Read More
A Mother’s Day Story: On Being a Mom with Epilepsy
My life is the same as any other Mom. I wake up in the morning to my kids in my bed snuggled in next to me. I wouldn’t have it any other way. The difference in my case, however, is that heavy stress and lack of sleep are seizure triggers for me. … Read More
Dan’s Story: Running with seizures and not even know it
Knee tendinitis, ankles that sprain easily … most marathon runners are nagged by a particular body part that is prone to injury. My nag is my head. I have epilepsy that, for whatever reason, tends to be provoked by running. I’ll be in the middle of a run, cruising along, feeling great, and – bam! – suddenly have a seizure. Bummer when you’re trying to set a personal record.… Read More
Lisa’s Story: Childhood Epilepsy with Petit Mal Seizures
As a child, my seizures were a very pleasant experience, but for the longest time my parents thought I was just daydreaming. I went undiagnosed until I was 8. I was having over 100 petit mal seizures a day, and my grades were so poor that I was put into English as a Second Language (ESL) courses because my teachers didn’t think I knew English.… Read More
Sandra’s Story: I have epilepsy, epilepsy doesn’t have me
I realize that I am lucky because I have read stories of people and how they struggle with epilepsy. I ask myself, should I be struggling? Should I be worried all the time? But, then I stop and tell myself, NO! This is MY life and MY epilepsy story.… Read More
Anonymous Story: The good life despite epilepsy
My seizures have persisted through those 60 years at the rate of about 4 seizures per month. Still, I’ve had a pretty good life. … Read More
Following a Ketogenic Diet Through the Holidays
Guest Post By Robyn Blackford, RD, LDN, the ketogenic dietitian at Ann & Robert H. Lurie Children’s Hospital of Chicago, IL While some parents allow their children the freedom to gorge on holiday meals and treats, some do not have that luxury. Children following the Ketogenic Diet (KD) for the treatment of … Read More