Epilepsy Awareness Month 2018: What you need to know
November is Epilepsy Awareness Month and it’s a great opportunity to get people talking about a disease that affects between 1-3% of the world’s population.… Read More
Epilepsy Blog Relay: The story of the Mahenge Epilepsy Clinic
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Mahenge Epilepsy Clinic It started in the late 1950’s when Dr. Louise Jilek-Aall discovered an unusually high number of outcasts from the Wapogoro tribe in the Mahenge Mountains, Tanzania. These outcasts … Read More
Epilepsy Blog Relay: Emily on Smart Monitoring her epilepsy and seizure alert systems
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through to the 30th. Follow along and add comments to posts that inspire you! Smart Monitoring my Epilepsy Let’s get real, having a condition can make you feel bad, physically or emotionally, and sometimes both. I take three lots … Read More
Epilepsy Blog Relay: Life with Epilepsy in Kenya
This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018. Follow along! Rich’s Story Symptoms of having Epilepsy were evident but not confirmed by a medical practitioner since 2002. Due to lack of epilepsy information I lived with it until the episodes exceeded. … Read More
The Guinea Epilepsy Project conducts 300 patient visits free of charge
I recently had the opportunity to speak to Farrah Mateen, MD, PhD, Massachusetts General Hospital/Harvard Medical School, the principal investigator on The Guinea Epilepsy Project. This is the latest in a series of global health projects Dr. Mateen has led, including The Bhutan Epilepsy Project. … Read More
Epilepsy Blog Relay: Emily on finding comfort when seizures return
This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along! Hi Living Well family, I feel like it’s been a while. I’m OK though. A couple of weeks ago, I sadly ended up in hospital after suffering a seizure that involved … Read More
He said: Emily and Dan on dating and epilepsy
I remember when Emily and I were first dating. My friends would ask me, “Aren’t you worried about what would happen if she has a seizure? Can you deal with that?” I would always find that such a strange question. I wanted to be with Emily for who she was as a person.… Read More
She said: Emily and Dan on dating and epilepsy
I met Daniel properly in 2014. He had read a lot of my blogs before we even started talking, so he knew all about my condition. So I never had to break it to him that I live with this unpredictable condition of Epilepsy. Sometimes that can be one of the hardest parts in the beginning of a new relationship.… Read More